KSL GIVE-A-THON

Primary Children’s gives Cammdon a new chance at life

Dec 2, 2021, 10:29 PM | Updated: Dec 3, 2021, 9:45 am

When Cammdon was born everything seemed perfect. He was born full term. He was absolutely healthy. No issues.

But then at 18 months old his health took a turn.

“He was really sick one night in bed….aspirated we gave him CPR. He was taken to the emergency room. Everything seemed normal,” Jessie Edwards, Cammdon’s step-dad said. “And then he started having seizures.”

The seizures then became a constant concern.

“I think watching your child have seizures is one of the scariest things,” Darci Edwards, Cammdon’s mom said. “Because really, there’s nothing you can do.”

“Medicines weren’t helping with it,” Jessie said.

“They really didn’t know what what was going on. He had all the doctors baffled,” Darci said. “We would have breakthroughs where he wouldn’t have seizures. And then we would go months with seizures.”

Primary Children’s Hospital became a second home to them.

“The last stay, we were there from November to February. And it was December 31, that they came in and was like, we’re out of options. We don’t know what else to do anymore,” Darci said.

Brain Surgery seemed like their only option.

“Where they cut his brain in half to try and stop the seizures from bouncing side to side,” Darci said.

But just days before the surgery a breakthrough discovery was made using a relatively new test available at Primary Children’s hospital.

According to Dr. Josh Bonkowsky, Director, Center for Personalized Medicine at Primary Children’s Hospital, “rapid whole genome sequencing is the technology that lets us analyze all the genetic material. So that’s the whole genome part.”

“Oftentimes, we don’t know what’s causing the illness and the genetic tests, this rapid whole genome sequencing, lets us look to see, is there a genetic change that’s causing the illness?” said Bonkowsky.

It was discovered that Cammdon had a vitamin B6 deficiency.

“We’re suspecting that he’s gone three years of life without vitamin B6,” Jessie said. “And the reason why we didn’t see signs of anything, is because for 18 months, he was able to make it work.”

“It was a Sunday night and Jesse had just left to come back home to go to work,” Darci said. “And they called me and the doctor was so excited. She’s like, ‘This is it. We found it.'”“They came back and said, ‘We just found a B6 gene mutation, we’re gonna try to give him a heavy amount of vitamin B6,'” Jessie said. “And I was like, Yeah, vitamin. That’s it. That’s what we’re gonna do. And she’s like, No, really that this is it. And so he’s been seizure free ever since,” Darci said.

That was nearly 2 years ago. The Edwards credit the doctors and other care givers at Primary Children’s Hospital for saving Cammdon’s life.I don’t believe there’s a better hospital,” Jessie said. “They cried with us and they were defeated with us. But they also celebrated with us,” Darci said. “It’s an amazing place,” Jessie said.  “I always said it was the best worst place in the world.”

“I don’t think there’s enough thanks in the world to give to them,” Darci said.

Their journey with Cammdon has given his parents a new perspective.

“My perspective of life is I don’t let the little things get to me anymore, Jessie said. “He’s my role model.”

“It’s made us really celebrate Camden every day in the life we have with him and the true miracle he is,” Darci said.

Primary Children’s hospital provides miracles for so many children. Help children like Cammdon by donating here KSLKids.com

KSL 5 TV Live

Top Stories

KSL Give-A-Thon

...
Carole Mikita

Family of boy with rare genetic disorder thankful for care at Primary Children’s

With a big smile and a clap of his hand, anyone can tell that Emmett Bleyle is a lively, happy 5-year-old. His parents will tell you that every day of his life is a gift.
18 days ago
...
No Author

KSL Give-A-Thon

KSL NewsRadio and TV, together with FM100.3 and 103.5 The Arrow have teamed up to raise more money for the kids being served by the hospital than ever before! Listen and watch for compelling stories, interviews with patients, families and hospital staff. We’ll share the story of this incredible hospital and the hundreds of amazing […]
26 days ago
...
Ashley Moser, KSL TV

Early diagnosis of rare heart condition helps Amaya on her road to recovery

Amaya was born with a rare heart condition, which, fortunately, was found before she was born.
1 year ago
...
Angie Denison, KSL TV

Young boy battles severe heart defect, endures multiple heart surgeries

Talmage has a severe heart defect called hypoplastic left heart syndrome. At three days old, he underwent his first heart surgery. Since then, he has undergone two more complex, open-heart surgeries.
1 year ago
(Courtesy: Nijst Family)...
Angie Denison and Eliza Pace, KSL TV

Preston uses his voice to stay positive while battling rare cancer

Preston Christian remains positive in his final battle with cancer, encourages others to make the most of their time.
1 year ago
The dance and music therapy program at Primary Children's Hospital is a huge help for children like...
KSL TV Staff

Young Sophia benefits from Primary Children’s Hospital dance, music therapy program

It's been proven, kids are empowered through Music and Art Therapies to manage pain, express emotion, and keep a positive attitude during a hospital stay. As part of KSL’s Primary Children's Give-A-Thon campaign, we met a patient named Sophia who has benefited from both Dance and Music Therapy at the hospital.
1 year ago

Sponsored Articles

house with for rent sign posted...
Chase Harrington, president and COO of Entrata

Top 5 reasons you may want to consider apartment life over owning a home

There are many benefits of renting that can be overshadowed by the allure of buying a home. Here are five reasons why renting might be right for you.
Festive kitchen in Christmas decorations. Christmas dining room....
Lighting Design

6 Holiday Decor Trends to Try in 2022

We've rounded out the top 6 holiday decor trends for 2022 so you can be ahead of the game before you start shopping. 
Happy diverse college or university students are having fun on their graduation day...
BYU MBA at the Marriott School of Business

How to choose what MBA program is right for you: Take this quiz before you apply!

Wondering what MBA program is right for you? Take this quiz before you apply to see if it will help you meet your goals.
Diverse Group of Energetic Professionals Team Meeting in Modern Office: Brainstorming IT Programmer...
Les Olson

Don’t let a ransomware attack get you down | Protect your workplace today with cyber insurance

Business owners and operators should be on guard to protect their workplace. Cyber insurance can protect you from online attacks.
Hand turning a thermostat knob to increase savings by decreasing energy consumption. Composite imag...
Lighting Design

5 Lighting Tips to Save Energy and Money in Your Home

Advances in lighting technology make it easier to use smart features to cut costs. Read for tips to save energy by using different lighting strategies in your home.
Portrait of smiling practitioner with multi-ethnic senior people...
Summit Vista

How retirement communities help with healthy aging

There are many benefits that retirement communities contribute to healthy aging. Learn more about how it can enhance your life, or the life of your loved ones.
Primary Children’s gives Cammdon a new chance at life