KSL GIVE-A-THON

Early diagnosis of rare heart condition helps Amaya on her road to recovery

Dec 3, 2021, 8:21 AM

SALT LAKE CITYAmaya was born with a rare heart condition, which, fortunately, was found before she was born.

KSL’s Ashley Moser is sharing the story of her baby and her experience at Intermountain Primary Children’s Hospital.

From the moment we heard her heartbeat, to the big announcement that she was joining our family, our world has never been the same.

“Deep down inside, I knew it was going to be a girl,” said Ashley’s husband, Michael.

Michael and I were ecstatic from the beginning, but it’s almost like we knew this pregnancy was going to be much different than our first.

“Being familiar with the first one and movements, we knew what to expect, and so, right then and there, when Ashley was telling me stuff that wasn’t like the first one, and we knew our first one was good, then we started having concerns,” he said. 

At 35 weeks, I didn’t feel her kick as much and went into my doctor’s office.

What we found out at that appointment would change everything.

“Amaya has a bright spot on her heart, and they don’t know what it is, and we need to go in for further testing,” Michael said.

Through a fetal echocardiogram, pediatric cardiologists at Primary Children’s Hospital spotted and diagnosed our daughter with a rare heart condition — one that causes the natural closure of a blood vessel before birth, instead of after.

“In premature ductal closure, a lot of the time we don’t know why that happens,” said Dr. Lindsey May. “Sometimes there is a clear, obvious reason, but most of the time, there isn’t.”

May said diagnosing our daughter when we did was crucial.

“There is definitely the chance that she wouldn’t have survived if it had gone on longer undetected,” the doctor said.

That detection led doctors to induce me four days later.

Amaya was born and whisked away to the NICU, where doctors monitored her heart.

“The right heart was struggling. It definitely had weak, poor function,” May said. “We could see that the valve function of the tricuspid valve was poor, and we could see that she had pulmonary hypertension.”

Amaya came home at five days old on oxygen.

For the next three months, we had follow-ups at Primary Children’s Hospital — appointments that showed she was improving.

“Her lung pressures were coming down, and gradually, we were able to just, very slowly, wean her off oxygen, to the point where her echo now, it’s normal,” May said. “Without any oxygen support, she’s growing, she’s thriving and just doing really, fantastically well.”

Amaya’s road to recovery has been a steady one. One made possible by the careful planning and expertise of her doctors. One that continues to help our little girl thrive.

“I see a happy baby that was able to get the care and attention that she needed, and we were able to be informed on what we had to do, and now, she’s living a happy life,” Michael said.

Your donations can help provide funds for other amazing work underway at Primary Children’s Hospital.

We hope you will be generous and donate to our KSL Give-A-Thon.

You can do so by going to KSLKids.com.

KSL Give-A-Thon

KSL 5 TV Live

KSL Give-A-Thon

Ysabelle Cuevas a is a nurse at Intermountain Primary Children’s Hospital and also a also celebra...

Angie Denison and Michael Houck, KSL TV

Pop Star Nurse: Ysabelle Cueva pursues both of her passions

By day, Ysabelle Cuevas is a registered nurse at Intermountain Primary Children’s Hospital. But her other passion is inspiring others with her music.

1 day ago

Khloee’s life took an unexpected turn when she was diagnosed with scoliosis, a condition where th...

Angie Denison

Khloee’s journey: Overcoming scoliosis with courage and cheer

Khloee’s life took an unexpected turn when she was diagnosed with scoliosis, a condition where the spine curves abnormally.

2 days ago

...

Angie Denison

Whit Bowman: A story of resilience and hope

Facing life-threatening complications before he was born Whit defied the odds and continues to inspire those around him.

3 days ago

The Hill family (Courtesy Angie Erickson)...

Angie Denison, KSL TV

Scarlet’s journey: Unraveling the ribbons of genetic secrets

When Scarlet and her family participated in the 2022 Give-A-Thon, she was an active kindergartner with an undiagnosed genetic disorder that causes developmental delays and seizures.

7 days ago

Ollie Judy, a 3-year-old boy who suffers from a rare genetic disease called CD-K. Ollie is only the...

Tamara Vaifanua and Mary Culbertson, KSL TV

Idaho family celebrates Primary Children’s Hospital for the care they receive for 3-year-old Ollie

3-year-old Ollie battles a rare genetic disorder called CD-k. His family travels weekly from Idaho to Primary Children's Hospital to get him the care he needs.

7 months ago

Give A Thon...

Madison Swenson

How to donate to Primary Children’s Hospital during KSL’s Give-A-Thon

The annual KSL Give-A-Thon is Wednesday, Nov. 30 in partnership with Intermountain Primary Children's Hospital. Here's how you can donate.

2 years ago

Sponsored Articles

Electrician repairing ceiling fan with lamps indoors...

Lighting Design

Stay cool this summer with ceiling fans

When used correctly, ceiling fans help circulate cool and warm air. They can also help you save on utilities.

Side view at diverse group of children sitting in row at school classroom and using laptops...

PC Laptops

5 Internet Safety Tips for Kids

Read these tips about internet safety for kids so that your children can use this tool for learning and discovery in positive ways.

Women hold card for scanning key card to access Photocopier Security system concept...

Les Olson

Why Printer Security Should Be Top of Mind for Your Business

Connected printers have vulnerable endpoints that are an easy target for cyber thieves. Protect your business with these tips.

Modern chandelier hanging from a white slanted ceiling with windows in the backgruond...

Lighting Design

Light Up Your Home With These Top Lighting Trends for 2024

Check out the latest lighting design trends for 2024 and tips on how you can incorporate them into your home.

Technician woman fixing hardware of desktop computer. Close up....

PC Laptops

Tips for Hassle-Free Computer Repairs

Experiencing a glitch in your computer can be frustrating, but with these tips you can have your computer repaired without the stress.

Close up of finger on keyboard button with number 11 logo...

PC Laptops

7 Reasons Why You Should Upgrade Your Laptop to Windows 11

Explore the benefits of upgrading to Windows 11 for a smoother, more secure, and feature-packed computing experience.

Early diagnosis of rare heart condition helps Amaya on her road to recovery