LOCAL NEWS

A family finds a miracle drug for their son, but it comes at a high cost

Feb 16, 2022, 9:49 PM | Updated: Jun 13, 2022, 4:37 pm

The Sorensens say they are getting a very real life-lesson about the gaps in our nation’s health care system.

While they’ve never really had a major need, they’re now seeing that an urgent opportunity for their son’s condition comes at a steep cost.

Cal Sorensen’s love for basketball knows no bounds. He’s almost 10 years old and he was born with achondroplasia, the most common form of dwarfism.

“His favorite player is Rudy Gobert. He loves the Jazz.”

“It occurs in about one in 40,000 people,” Marcus Sorenson said. “When we had Cal, we had no idea that that was even really possible.”

Marcus and Jamie Sorensen say their son is mostly unfazed.

“He’s really good at just rolling with it,” Marcus said.

But then they learned there’s a chance for him to gain a bit more height. It’s called voxzogo, and it’s enough to be a big deal. But like most breakthrough drugs, it’s expensive.

“When the drug came out, we were excited at the thought of possibly Cal just you know…it’s not an amazing change in height, but it gives them, from what we’ve read and researched, a little bit — 2 to 3 inches,” Jamie said. “The drug is $30,000 a month.”

Marcus says as a small-business owner, he’s learned it’s nearly impossible to get the type of insurance that will cover it.

“Seems nonsensical to me. Why, if I were to work for Google, I’d have great insurance, but if I own my own small business. which is kind of the backbone of this country, I can’t get a hold of insurance that’s worth anything without paying through the nose,” Marcus said.

It’s a disparity they won’t likely overcome in time. Cal would need to take the drug while his growth plates are open… a window that could close as he reaches adolescence.

“It’s a lot of money,” Cal said.

Either way, the Sorensens say life will go on, but they say it’s just one example of disparities in our health care system.

A lot of people are hit harder by it, but there doesn’t seem to be an easy answer.

KSL 5 TV Live

Local News

After a workplace shooting Sunday afternoon, the CEO of Varex Imaging, an international X-ray busin...

Brianna Chavez

CEO of Varex Imaging says he’s focused on helping employees after workplace shooting

After a workplace shooting Sunday afternoon, the CEO of Varex Imaging, an international X-ray business, told KSL the aftermath has been sad but is focused on how to move forward.

7 minutes ago

Jhon Alvaro-Alarcon Paredes, 20, is accused of shooting a teenager in a McDonald's parking lot in U...

Mary Culbertson

‘Wanted fugitive’: McDonald’s shooting suspect in custody after fleeing to Colorado

A man is in custody in Colorado after he allegedly shot a teenager in the parking lot of a Utah McDonald's and then fled the scene.

21 minutes ago

Beds prepared for visitors at William A. Burnard Warming Center as a Code Blue is in effect....

Mike Anderson

Logan Warming Center prepares for homeless community after Code Blue alert

A Logan warming center is asking for more volunteers and resources as the area is hit by another Code Blue warning.

24 minutes ago

Dallin Cunningham, 8, who died from his injuries after falling off a slide at Rose Springs Elementa...

Pat Reavy, KSL.com

Family of boy who died falling from playground slide sues school district

The parents of an 8-year-old boy who died a year ago after falling off a school playground slide during recess have filed a wrongful death lawsuit against the school district.

1 hour ago

PeeDee, the puppy found by Price City police officers and is being trained as a Critical Incident E...

Michael Houck

Abandoned puppy undergoes training as a Price City emotional support dog

An abandoned puppy found by a Price City police officer is now being trained as an emotional support dog for the department.

2 hours ago

An undated photo of the Gunlock State Park waterfalls. The waterfalls are expected to return this s...

Eliza Pace

Gunlock waterfalls are flowing again

Like an oasis in the desert, the Gunlock waterfalls have returned. 

2 hours ago

Sponsored Articles

Modern chandelier hanging from a white slanted ceiling with windows in the backgruond...

Lighting Design

Light Up Your Home With These Top Lighting Trends for 2024

Check out the latest lighting design trends for 2024 and tips on how you can incorporate them into your home.

Technician woman fixing hardware of desktop computer. Close up....

PC Laptops

Tips for Hassle-Free Computer Repairs

Experiencing a glitch in your computer can be frustrating, but with these tips you can have your computer repaired without the stress.

Close up of finger on keyboard button with number 11 logo...

PC Laptops

7 Reasons Why You Should Upgrade Your Laptop to Windows 11

Explore the benefits of upgrading to Windows 11 for a smoother, more secure, and feature-packed computing experience.

Stylish room interior with beautiful Christmas tree and decorative fireplace...

Lighting Design

Create a Festive Home with Our Easy-to-Follow Holiday Prep Guide

Get ready for festive celebrations! Discover expert tips to prepare your home for the holidays, creating a warm and welcoming atmosphere for unforgettable moments.

Battery low message on mobile device screen. Internet and technology concept...

PC Laptops

9 Tips to Get More Power Out of Your Laptop Battery

Get more power out of your laptop battery and help it last longer by implementing some of these tips from our guide.

Users display warnings about the use of artificial intelligence (AI), access to malicious software ...

Les Olson

How to Stay Safe from Cybersecurity Threats

Read our tips for reading for how to respond to rising cybersecurity threats in 2023 and beyond to keep yourself and your company safe.

A family finds a miracle drug for their son, but it comes at a high cost