On the Site:


Idaho family celebrates Primary Children’s Hospital for the care they receive for 3-year-old Ollie

Oct 17, 2023, 10:59 AM | Updated: 11:03 am

SALT LAKE CITY — Every moment the Judy family has with their three-year-old son Oliver, or Ollie, is a gift.

Ollie battles a rare genetic disorder, of which he’s only the forty-fifth patient to be diagnosed. There have been some close calls. However, his family stands by him with regular visits to Primary Children’s Hospital for treatment and regularly turns the challenge into a blessing.

When he meets people, Ollie draws people in with his smile and cute, red curls.

“He’s pretty much the joy to everybody,” Ollie’s mom, April Judy, said. “He makes bad days better. He’s the best snuggler.”

3-year-old Oliver Gerald, or nicknamed "OG" or "Ollie". (KSL TV)

3-year-old Oliver Gerald Judy, or nicknamed “OG” or “Ollie”. (KSL TV)

Judy drives four hours from Ammon, Idaho to PCH for Ollie’s appointment, a twice-per-month routine he’s endured since he was born. Judy was 20 weeks pregnant when she found out Ollie had a heart condition.

“We’ve gone through some pretty scary moments I won’t lie. We went through some genetic testing. We went and saw some specialists and finally ended up here at Primary Children’s Hospital in their cardiac unit.”

Doctors prepared a care plan and Ollie was born on March 3, 2020 at the University of Utah hospital.

“We’re very blessed our plan didn’t end up in the scary route,” Judy said.

More genetic testing led to a diagnosis of CDK-13, a rare genetic syndrome that causes congenital heart defects, and motor or language delays.

“He doesn’t have a lot of the same abilities that other kiddos have his age and he communicates in a different way, being nonverbal.”

In his short life, Ollie has had two heart surgeries and six brain surgeries, with the possibility of two more on the way.

“We’ve gone through a lot. There have been many moments when we didn’t know if we could go any further.”

Judy credits the caring team of specialists at Primary Children’s.

“They really focus on him as a person, and not just a patient.”

For Judy, connecting with other families going through the same thing gives her hope.

“They have a family Facebook page which has been super helpful. And everybody is very uplifting and supportive, and we ask questions and we get feedback,” Judy said. “Our goal is to help Ollie become the best Ollie that he can be,” said Judy. “And that’s just kind of our family mantra.”

Ollie’s four siblings are his biggest fans. They celebrate every moment they have with their hero.

The Judy family. (KSL TV)

The Judy family. (KSL TV)

“We don’t need to put time frames or a list of things that we need to get accomplished. It’s what are we going to do today and that’s what we’re going to be grateful for. We see a future with him,” Judy said. “And I know that is because of Primary Children’s Hospital.”

KSL 5 TV Live

KSL Give-A-Thon

Give A Thon...

Madison Swenson

How to donate to Primary Children’s Hospital during KSL’s Give-A-Thon

The annual KSL Give-A-Thon is Wednesday, Nov. 30 in partnership with Intermountain Primary Children's Hospital. Here's how you can donate.

1 year ago


Carole Mikita

Family of boy with rare genetic disorder thankful for care at Primary Children’s

With a big smile and a clap of his hand, anyone can tell that Emmett Bleyle is a lively, happy 5-year-old. His parents will tell you that every day of his life is a gift.

1 year ago

Follow @KSL5TVLike us on Facebook...

No Author

KSL Give-A-Thon

KSL NewsRadio and TV, together with KSL Sports, FM100.3 and 103.5 The Arrow have teamed up to raise more money for the kids being served by the hospital than ever before! Listen and watch for compelling stories, interviews with patients, families and hospital staff. We’ll share the story of this incredible hospital and the hundreds […]

1 year ago


Ashley Moser, KSL TV

Early diagnosis of rare heart condition helps Amaya on her road to recovery

Amaya was born with a rare heart condition, which, fortunately, was found before she was born.

2 years ago


Angie Dennison and Eliza Pace, KSL TV

Primary Children’s gives Cammdon a new chance at life

Cammdon suffered debilitating seizures...then a groundbreaking brain surgery changed his life.

2 years ago


Angie Denison, KSL TV

Young boy battles severe heart defect, endures multiple heart surgeries

Talmage has a severe heart defect called hypoplastic left heart syndrome. At three days old, he underwent his first heart surgery. Since then, he has undergone two more complex, open-heart surgeries.

2 years ago

Sponsored Articles

Stylish room interior with beautiful Christmas tree and decorative fireplace...

Lighting Design

Create a Festive Home with Our Easy-to-Follow Holiday Prep Guide

Get ready for festive celebrations! Discover expert tips to prepare your home for the holidays, creating a warm and welcoming atmosphere for unforgettable moments.

Battery low message on mobile device screen. Internet and technology concept...

PC Laptops

9 Tips to Get More Power Out of Your Laptop Battery

Get more power out of your laptop battery and help it last longer by implementing some of these tips from our guide.

Users display warnings about the use of artificial intelligence (AI), access to malicious software ...

Les Olson

How to Stay Safe from Cybersecurity Threats

Read our tips for reading for how to respond to rising cybersecurity threats in 2023 and beyond to keep yourself and your company safe.

Design mockup half in white and half in color of luxury house interior with open plan living room a...

Lighting Design

Lighting Design 101: Learn the Basics

These lighting design basics will help you when designing your home, so you can meet both practical and aesthetic needs.

an antler with large horns int he wilderness...

Three Bear Lodge

Yellowstone in the Fall: A Wildlife Spectacle Worth Witnessing

While most people travel to this park in the summer, late fall in Yellowstone provides a wealth of highlights to make a memorable experience.

a diverse group of students raising their hands in a classroom...

Little Orchard Preschool

6 Benefits of Preschool for Kids

Some of the benefits of preschool for kids include developing independence, curiosity, and learning more about the world.

Idaho family celebrates Primary Children’s Hospital for the care they receive for 3-year-old Ollie